Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers
Family caregivers of individuals with Alzheimer’s Disease and Related Dementia (AD/ADRD) face significant emotional and logistical challenges that place them at heightened risk for stress, anxiety, and depression. Although recent advances in generative AI—particularly large language models (LLMs)—offer new opportunities to support mental health, little is known about how caregivers perceive and engage with such technologies. To address this gap, we developed Carey, a GPT-4o–based chatbot designed to provide info…
Carey, a GPT-4o-based chatbot, was used as a probe to provide AD/ADRD family caregivers with on-demand information access and a safe space for disclosure for emotional support.
Caregivers reported nuanced tensions and concerns about using the chatbot for mental health support, including gaps around crisis management, personalization, and data privacy.
Findings are based on a small qualitative probe of 16 caregivers using scenario-driven interactions rather than real-world deployment, limiting generalizability about sustained mental health outcomes.
Evidence
- Peer-reviewedACM Transactions on Computing for Healthcare2026-03-24
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Truvace Impact Record TRV-2026-0347, v1: “Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers.” Truvace, 2026-07-20. /record/TRV-2026-0347 (accessed at citation time). sha256 6a2ba907c4ff1244…
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